Update and Thank Yous

     A lot of personal obstacles have transpired within the past few months, enabling me from keeping Lucy’s blog updated. My apologizes to everyone who follows her and her journey and I also want to give a special “Thank You” to the followers who have constantly sent comments and “Are you still blogging?” comments and messages. In the near future I plan to add a Vlog to this site. I have the software to do it, I just have to become more familiarized with it.

     Now on to what this place is really about.

     Lucy still has her up and down days. Some days she’s extremely active, others, like today, she’s almost lethargic. She woke up this morning just like any other day, took her meds and went back to sleep. It’s noon and she’s still lost in dream land. Last night she was very restless and having mini convulsions. Unfortunately, I’ve gotten use to that and it’s extremely exhausting for the both of us. She’s still continuing with physical and speech therapy, with hopes of adding occupational therapy before she begins school. Her speech has improved very much with the exception of calling everyone regardless of gender, “she”, speaking in third person and reversal speech. We are trying, with patience, to correct this, but something it can be very humorous. For example, yesterday Lucy and I were looking through family photos and I was explaining to her that the photo she kept pointing towards was her father when he was a baby.        Lucy peaked up and said “Oh! That’s a baby daddy!”  I corrected it, of course, without containing my laughter.

     Lucy has a follow-up with both her pediatrician  and neurologist next month. As for now, she is STILL sleeping.

     I’m tempted to go join her.

Happy Birthday/Happy Holidays

I was waiting for Lucy’s MRI results before posting another entry, but since Lucy turned 3 and also celebrated the holidays, I decided to continue with this post.

Lucy’s MRI was less complicated than I imagined it would be. She attends CMC/Levine’s children’s hospital for her specialist. Anyway, the hospital is HUGE with wide, colorful halls and different sections to fit each individual need of a particular child, with each section and each floor having escorts. Once admitted and all the paperwork was completely, Lucy was sedated using anesthesia gas. This took only a matter of seconds, so once the anesthesia took effect, I was escorted by the waiting room with a buzzer that actually felt more like a taser when activated. After the MRI, Lucy was taken to the recovery floor. It took her less than an hour to wake up, but the effects of the gas remained with her for the entire day.  The entire process, from signing in to signing out, took about 3 hours.

The pictures range from the lobby, the waiting room, their Christmas tree to the buzzer/taser.


Lucy and Daddy, the day after Christmas



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